Showing posts with label MS. Show all posts
Showing posts with label MS. Show all posts
Thursday, May 30, 2024
Friday, March 1, 2024
March is MS Awareness Month:
March
is Multiple Sclerosis (MS) Awareness Month
Please make a donation to fund research searching for a cure and to support those who are impacted by this disease.
#BikeMS
#Brain #ChronicIllnessWarrior #CureMS #Demyelination #Disease #FightMS #FuckMS
#FuckYouMS #FUMS #Lesion #MovingMountainsForMS #MS #MSawareness
#MSAwarenessMonth #MSeducation #MSOnMyMind #MultipleSclerosis #MSHope #MSstrong
#MSSucks #MSwarrior #MuckFestMS #Myelin #mymsme #OverMS #LivingWellWithMS
#ThisIsMS #vertigo #WalkMS #WalkTogether #WeAreILLmatic #WeAreStrongerThanMS
#WorldMSDay #March1
Sunday, December 25, 2022
On the 12th Day of Christmas, MS Gave to Me:
On the 12th Day of Christmas, MS Gave to Me
Positive Living with MS by Penelope Conway
Thursday, September 15, 2022
Actress Teri Garr Calls Multiple Sclerosis a “Scum Sucking Pig of a Disease”:
November 5,
2018
Teri Garr is a 73-year-old actress best known for
her roles in Young Frankenstein, Oh, God!, Tootsie, and Close Encounters of the
Third Kind. She also played Phoebe’s biological mother on the TV sitcom
Friends. One day in 1983, Teri went out for a run around Central Park in New
York. She began to experience a tingling in her right leg and before long, she
felt a sharp pain in her arm. During this time, Teri was at the peak of her
career and she was not going to let a little pain and tingling get her down.
“Every movie I did, I’d go see a different doctor in the location where we were
shooting, and everyone had a different opinion about what it might be. Every so
often someone would mention MS, but then someone else would think it was
something else,” she said.
Over the next 16 years, she kept on working and
her symptoms came and went. Finally, in 1999, she received a definite diagnosis
of multiple sclerosis. Teri, who had also trained as a dancer, did not feel sad
or depressed about her condition. Rather, she felt angry. She could not
understand how her body could have deceived her and this anger brought up
memories of her mother.
Teri’s
complicated upbringing
Teri grew up in a family involved in show
business. Her father, Eddie Garr, was an ex-vaudevillian and her mother,
Phyllis Garr, was a former Radio City Rockette. However, the family was
struggling to make ends meet and at one point, they decided to split their
house and rent out the front. At the age of 11, Teri’s father died, leaving her
mother with three children to take care of. Despite the family’s devastation,
her mother Phyllis remained optimistic and wore a pin on her blouse that read
EGBOK – Everything’s going to be OK. In order to get by, Phyllis worked 18
hours a day and ultimately, she was able to put Teri and her two brothers
through college. “That was my role model. Someone who takes care of things,
copes. So, I was conditioned to do that,” said Teri.
Unfortunately, in Hollywood, a physical handicap
can sometimes mean the end of one’s career, as the acting business is very
judgmental. For this reason, Teri decided to keep her diagnosis quiet and tried
her best to mask her symptoms. She knew that agents and producers would view
her as being disabled, so she felt like she needed to protect herself. She
frequently stumbled and dropped objects in the privacy of her own home, but she
could handle the accidents. “Getting depressed or sad wouldn’t have helped me,”
she said.
Revealing
her diagnosis to the world
Finally, she decided to tell the world the secret
she had been hiding because rumors were floating around and she wanted the
information to come from her and not an outsider. “I thought, there’s too much
drama here. What if someone went out and talked about it like a stand-up comic?
If you get somebody laughing — and then stick in a point about something important
— they’ll remember it,” said Teri. So, in October of 2002, she went on ‘Larry
King’ and spoke publicly about her condition, all the while using her wit. She
also used to same wit when she went on ‘Letterman’ to raise awareness on MS and
uplift the spirits of MS patients and their families.
Advocating
for MS
As a spokesperson for MS LifeLines, an educational
and support service, Teri traveled the country to speak to individuals with MS.
She aimed to encourage them to find out everything they could on available
treatment options and to try to move forward with their lives. She spoke out
about her own symptoms, including extreme fatigue, stumbling, and difficulty
controlling her right hand. “I had weakness on the right side — arm, leg, and
foot. Having to manage fatigue is something I and many people with MS have to
deal with, and heat is no friend to my MS either; it can be devastating.
However, each person with MS lives with his or her own special suitcase of
symptoms. Yet, we all work around our symptoms and move forward with our
lives,” she said. Teri also spoke out about how one type of approved
disease-modifying drug, a healthy diet, and exercise have helped her in
managing her symptoms and slowing down the progression of MS. In regards to exercise,
she noted that it is crucial to her well-being and she favors a machine similar
to that of a recumbent bicycle. “I try to use it an hour a day. It helps
strengthen both my arms and legs and is aerobic as well. Plus, I can read or
watch TV while I’m on it. In the summer I swim, which I really love. It’s vital
to keep moving,” she said. Although slowing down was not in her nature, Teri
realized that she had to because stress and anxiety were not good for MS. So,
she learned to ‘simplify’ her tasks and do one thing at a time.
Her advice to anyone who suspects MS
Teri’s advice to any individual who suspects that
they may have MS is to see a neurologist right away, as early treatment is
crucial. “I’d advise anyone recently diagnosed to relax. MS affects everyone
differently. The status of MS research has never been more exciting and there
are many therapies available that slow the progression of the disease. As we
all know, knowledge is power. Get involved on a local level. Become a
volunteer, be an advocate, join one of the many Walk MS or Bike MS events in
your area. Bring your friends and family with you. It’s a good way to connect
with people and you’ll feel better about not only helping yourself but helping
others,” she said.
These days, from time to time, the actress can
muster up the strength to walk for short periods of time. However, she
frequently needs to use a cane or wheelchair, as is the case for over 60% of
individuals who have MS. “I call it the scum sucking pig of a disease that
treats everyone differently. Some people don’t get any symptoms, but I wasn’t
one of them,” said Teri.
Still, despite her lasting battle with the
disease, Teri remains positive in the face of her condition. “I think some
people want you to be upset. Not only am I not upset, but I’m okay. I don’t see
any profit in being down, I don’t see that it gets you anywhere. Maybe it has
to do with my show-business background. You’re always being told that you’re
not right for something, not tall enough, not pretty enough, whatever. I would
say, ‘But I’m smart, I’m talented, I’m this, I’m that!’ I’ve always been able
to do that, and I do it now with MS,” she said. Teri has inspired so many
individuals and because of her, some are saying that they are no longer letting
their symptoms get in the way of them living their lives to the fullest and
pursuing their dreams. “Speaking out about multiple sclerosis to others who may
be dealing with this disease is actually helpful to me, as well as, I hope, to
others. It builds community, helps bring awareness to MS, and strengthens the
MS movement that will ultimately lead to the end of this disease,” she said.
References:
https://www.nationalmssociety.org/Get-Involved/Personal-Stories/Ambassadors-Familiar-Faces/Teri-Garr
In support of Multiple Sclerosis research:
#BikeMS #brain #CureMS #demyelination #disease
#FightMS #FuckMS #FuckYouMS #FUMS #lesion #MS
#MSawareness #MSAwarenessMonth #MSeducation #MultipleSclerosis #MSstrong
#MSSucks #MSwarrior #MuckFestMS #myelin #mymsme #OMS #ThisIsMS #vertigo #WalkMS #WalkTogether #WeAreStrongerThanMS #WorldMSDay
NEVER GIVE
UP!
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